Stephen J. Schueler, M.D.

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Von Recklinghausen's Disease Treatment

The treatment of neurofibromatosis varies with the type of the disease. In general, there is no cure for neurofibromatosis. Treatment for neurofibromatosis often includes some combination of chemotherapy and surgery.

Treatment for neurofibromatosis may include:

Von Recklinghausen's Disease Questions For Doctor

The following are some important questions to ask before and after the treatment of neurofibromatosis.

Questions to ask before treatment:

  • What are my treatment options?
    • Is surgery an option for me?
  • What are the risks associated with treatment?
  • Do I need to stay in the hospital?
    • How long will I be in the hospital?
  • What are the complications I should watch for?
  • How long will I be on medication?
  • What are the potential side effects of my medication?
  • Does my medication interact with nonprescription medicines or supplements?
  • Should I take my medication with food?

Questions to ask after treatment:
  • Do I need to change my diet?
  • When can I resume my normal activities?
  • When can I return to work?
  • Do I need a special exercise program?
  • Will I need physical therapy?
  • Will I need occupational therapy?
  • What else can I do to reduce my risk for having this problem again?
  • How often will I need to see my doctor for checkups?
  • What local support and other resources are available?

Von Recklinghausen's Disease Specialist

Physicians from the following specialties evaluate and treat neurofibromatosis:

Continue to Von Recklinghausen's Disease Home Care

Last Updated: Dec 21, 2010 References
Authors: Stephen J. Schueler, MD; John H. Beckett, MD; D. Scott Gettings, MD
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PubMed Von Recklinghausen's Disease References
  1. Boulanger JM, Larbrisseau A. Neurofibromatosis type 1 in a pediatric population: Ste-Justine's experience. Can J Neurol Sci. 2005 May;32(2):225-31. [16018159]
  2. Neff BA, Welling DB. Current concepts in the evaluation and treatment of neurofibromatosis type II. Otolaryngol Clin North Am. 2005 Aug;38(4):671-84, ix. [16005725]
  3. Young H, Hyman S, North K. Neurofibromatosis 1: clinical review and exceptions to the rules. J Child Neurol. 2002 Aug;17(8):613-21. [12403560]
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