Stephen J. Schueler, M.D.

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Von Hippel-Lindau Disease Questions For Doctor

The following are some important questions to ask before and after the treatment of Von Hippel-Lindau disease.

Questions to ask before treatment:

  • What are my treatment options?
    • Is surgery an option for me?
  • What are the risks associated with treatment?
  • Do I need to stay in the hospital?
    • How long will I be in the hospital?
  • What are the complications I should watch for?
  • How long will I be on medication?
  • What are the potential side effects of my medication?
  • Does my medication interact with nonprescription medicines or supplements?
  • Should I take my medication with food?

Questions to ask after treatment:
  • Do I need to change my diet?
  • Are there any medications or supplements I should avoid?
  • When can I resume my normal activities?
  • When can I return to work?
  • Do I need a special exercise program?
  • Will I need physical therapy?
  • Will I need occupational therapy?
  • How often will I need to see my doctor for checkups?
  • What local support and other resources are available?

Continue to Von Hippel-Lindau Disease Home Care

Last Updated: Jul 15, 2009 References
Authors: Stephen J. Schueler, MD; John H. Beckett, MD; D. Scott Gettings, MD
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PubMed Von Hippel-Lindau Disease References
  1. Joerger M, Koeberle D, Neumann HP, Gillessen S. Von Hippel-Lindau disease--a rare disease important to recognize. Onkologie. 2005 Mar;28(3):159-63. [15772467]
  2. Maher ER. Von Hippel-Lindau disease. Curr Mol Med. 2004 Dec;4(8):833-42. [15579030]
  3. Richard S; French VHL Study Group. von Hippel-Lindau disease: recent advances and therapeutic perspectives. Expert Rev Anticancer Ther. 2003 Apr;3(2):215-33. [12722881]
  4. Slater A, Moore NR, Huson SM. The natural history of cerebellar hemangioblastomas in von Hippel-Lindau disease. AJNR Am J Neuroradiol. 2003 Sep;24(8):1570-4. [13679272]
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