FreeMD® Ehlers-Danlos Syndrome Trusted Sites

Ehlers-Danlos Syndrome

Trusted Sites

Ehlers-Danlos Syndrome Trusted Sites

The following sites provide reliable information on this topic:

EDS Network C.A.R.E.S.
Ehlers-Danlos at the Arthritis Foundation
Ehlers-Danlos National Foundation
Ehlers-Danlos Syndrome clinical trials at the NIH

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Last Updated: Mar 24, 2009 References

Authors: Stephen J. Schueler, MD; John H. Beckett, MD; D. Scott Gettings, MD

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Ehlers-Danlos Syndrome References:

Germain DP, Herrera-Guzman Y. Vascular Ehlers-Danlos syndrome. Ann Genet. 2004 Jan-Mar;47(1):1-9.
Malfait F, De Coster P, Hausser I, van Essen AJ, Franck P, Colige A, Nusgens B, Martens L, De Paepe A. The natural history, including orofacial features of three patients with Ehlers-Danlos syndrome, dermatosparaxis type (EDS type VIIC). Am J Med Genet A. 2004 Nov 15;131(1):18-28.
Oderich GS, Panneton JM, Bower TC, Lindor NM, Cherry KJ, Noel AA, Kalra M, Sullivan T, Gloviczki P. The spectrum, management and clinical outcome of Ehlers-Danlos syndrome type IV: a 30-year experience. J Vasc Surg. 2005 Jul;42(1):98-106.